Filing archives cabinet on a laptop screen

The Right Lesson from the Google-Ascension Patient Privacy Story

By I. Glenn Cohen

As has been well reported in the media, there is a controversy brewing over nonprofit hospital chain Ascension sharing millions of patient records with Google for their project codenamed “Nightingale.” (very Batman, if you ask me!) Most of the discussion so far, and the answers have not yet become pellucid, concerns whether the hospital and Google complied with HIPAA.

 

This is important, don’t get me wrong, but it is important that conversation not ignore a more important question: Read More

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The Birth of GINA: An Interview with Jeremy Gruber

By Kaitlyn Dowling

Illustration of a gavel made out of a DNA helixIn a new, year-long series on Bill of Health, we’ll be exploring the legal scholarship on genetic non-discrimination. We’ll talk more about GINA and state laws protecting citizens from genetic discrimination. We hope these posts help shed light on this complex and ever-more-relevant area for legal scholars, policymakers, and the public at large.

The following is an interview with Jeremy Gruber, Senior Vice President at Open Primaries and the former President and Executive Director of the Council for Responsible Genetics. Jeremy Gruber led the passage of the Genetic Information and Nondiscrimination Act and other state-based genetic nondiscrimination legislation. As part of our series on GINA, he offered insights into GINA’s creation and what the future may hold for genetic nondiscrimination. The following interview has been lightly edited for length and clarity.

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image of a few petri dishes

The World is About to Change—Again

Dr. Susan Hockfield, the first female President of the Massachusetts Institute of Technology, has written a beautiful and powerful book, “The Age of Living Machines,” articulating her vision of the merging of engineering and biology. This merger, she argues, has potential to lead to a scientific revolution that she believes will create the future. The ability to distill complicated concepts into concise, understandable prose, is a skill with limitless value, regardless of the subject matter. Dr. Hockfield is clearly a master in this art, and why should we be surprised that the past Provost of Yale and President of MIT would possess such skill and aplomb.

In her book, Dr. Hockfield, an accomplished biologist who was recruited early in her distinguished career by Nobel Laureate James Watson to the iconic Cold Spring Harbor Laboratory, lays out the case for Convergence 2.0. This is, of course, the sequel to Convergence 1.0, the confluence of physics and engineering, which produced the electron and the information technology revolution, leading to breathtaking innovation that has altered virtually every aspect of human life. Read More

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Defining and Establishing Goals for Medicare for All

It is increasingly difficult to find a Democratic presidential hopeful who has not paid at least some lip service to “Medicare for all.” Indeed, ignoring this popular rhetoric would likely be political suicide for Democratic candidates.

In one poll, 73 percent of registered Democrats said they were more likely to vote for a presidential candidate who supported a Medicare for all health care policy. In response to the popularity of Medicare for all, House Democrats launched an official Medicare for All Caucus, with about 70 members.

Medicare for all, however, means many things to many people. As the fight to become the Democratic presidential candidate unfolds in 2019, it will be important to see how this term gets defined.

Many take Medicare for all to be policy shorthand for health or health care being a human right, entitling individuals to certain services and obligating the government to support access to health care.

For example, the Center for American Progress toted its proposal, Medicare Extra for All, by arguing that health care constitutes a right, as opposed to a privilege. Presidential hopeful U.S. Senator Elizabeth Warren (D-Mass.) similarly released a statement justifying her support of a Medicare for all bill by stating that “health care is a basic human right.”

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