Open Genomics and Privacy: New Case Law in South Africa Affirms a Key Principle

by Donrich Thaldar

As the era of genomic medicine dawns, large-scale genomics projects are becoming increasingly central to health care advancements. Projects like FinnGen in Finland, the UK Biobank, and the All of Us initiative in the United States are charting new frontiers in precision medicine, enabling researchers to unlock the genetic codes underlying a wide array of diseases. These initiatives collect genetic data from hundreds of thousands of individuals, providing an invaluable resource to identify disease markers and tailor medical treatments to individuals’ genetic makeup. Such projects are not only pushing the boundaries of medical knowledge but are also laying the foundation for a future where treatments are more effective and personalized.

However, in the Global South, large-scale genomics projects are far fewer. Qatar has taken strides with its own Qatar Genome Program, but examples are still limited across Africa and other regions, where genomics research is often constrained by funding, infrastructure, and representation issues. In Africa, where genetic diversity is high but research representation has historically been low, the need for such projects is critical. Without local genomics data, the benefits of precision medicine may largely bypass African populations, further exacerbating global health inequities.

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Does History Matter?

by Elena Caruso

While the exact definition of self-managed abortion remains blurred, it currently tends to refer to the end of a pregnancy through the autonomous administration of pills outside of a public health facility. The World Health Organization (WHO) recommends self-management for pregnancies under 12 weeks, using a combination of mifepristone and misoprostol (or misoprostol alone) and it includes both medications in its list of essential medicines. In its Abortion Care Guidelines, the WHO states that medication abortion has “revolutionized” access to abortion care, emphasizing the novelty of this method.  

While the origins of self-managed abortion with pills are not fully elucidated, it is generally accepted that this practice dates back to the second half of the 1980s in Brazil, when women discovered and disseminated the information that misoprostol (a medication legally available for the treatment of stomach and duodenal ulcers) could safely and effectively be used to prevent pregnancies. In the current debate on self-managed abortion, engagement with history is often limited to a few background sentences. This “ahistorical” approach can leave the impression that self-managed abortion lacks a significant and notable history. 

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Doctors as Advocates for Self-Managed Abortion and Reproductive Justice

Photo credit: Martina Šalov

by Jessica Morris

The International Federation of Gynecology and Obstetrics (FIGO) is the world’s largest alliance of national professional societies of obstetricians and gynecologists. FIGO supports comprehensive, equitable, and accessible sexual and reproductive health (SRH) for everyone, recognizing that these are fundamental human rights and essential components needed to achieve global health goals. 

FIGO works through its technical committee and its programmatic arm to improve access to abortion across the globe. Over the last two decades, FIGO has been a global advocate and played an important role in encouraging progressive, evidence-based thinking on abortion with its 130+ national professional societies and other stakeholder groups. FIGO has worked to strengthen and support these societies in becoming national leaders on SRH and driving important improvements, including  legal and policy developments, service provision, increasing supportive attitudes, and raising awareness and challenging bias.

What is the role of doctors in the de-medicalization of abortion?

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Unseen Scars: The Devastating Impact of Corruption on Mental Health Systems in Low and Middle-Income Countries

by Daniela Cepeda Cuadrado

There is a wealth of research demonstrating that corruption — the abuse of entrusted power for private gain — has contributed to weakening health systems and worsening public health globally. Corruption is associated with a higher infant mortality rate, the rise of antimicrobial resistance, and the diversion of key resources to invest in strengthening health systems. Corruption’s impact on health systems is well documented – that is if we see health systems only as the structures in place to cater to people’s physical health needs.

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Two Years On From A “Landmark” Abortion Decision in Kenya

Two years ago, the Kenyan High Court in Malindi decided PAK and Salim Mohammed v. Attorney General et al., affirming that the constitutional right to abortion is “fundamental.”

Approximately 2,600 people lose their lives to unsafe abortion in Kenya each year, with an additional 21,000 people requiring hospitalization. While the Kenyan Constitution, adopted in 2010, allows for abortion when the pregnant person’s life or health is at risk under Article 26(4), the Kenyan Penal Code still criminalizes it—a legal grey area creating “ambiguity, confusion, and stigma.

This article will describe the PAK decision and analyze it in line with trends in transnational abortion law.

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figurine with a void shape of a child and family of parents with a child. Surrogacy concept.

Regulating International Commercial Surrogacy

By Hannah Rahim

In January 2024, Pope Francis called for a universal ban on surrogacy as a threat to global peace and human dignity, claiming that the practice is a “grave violation” of the mother and child’s dignity and based on the “exploitation of situations of the mother’s material needs.” Surrogacy raises complex ethical and legal issues, particularly in cases of international surrogacy, where people seek surrogacy services from another country. There is currently no regulation of international surrogacy. Creating such regulation is important to allow appropriate access to surrogacy services while mitigating its harmful consequences.

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Stethoscope on Ghana flag.

Dr. Eunice Brookman-Amissah: A Pioneer in Safe Abortion Law Reform

By Joelle Boxer

Late last year, Dr. Eunice Brookman-Amissah won the Right Livelihood Award, also known as the “Alternative Nobel Prize,” for her pioneering efforts to improve safe abortion access in sub-Saharan Africa.

According to Dr. Brookman-Amissah, of the 36,000 deaths that occur globally due to unsafe abortion, almost 24,000 are in sub-Saharan Africa. “That was a totally unacceptable state of affairs,” she said, “given the fact that nobody, absolutely no woman has to die from a totally treatable and manageable cause.” Her advocacy work is credited with contributing to a 40% reduction in deaths from unsafe abortion in the region since 2000.

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View on Namche Bazar, Khumbu district, Himalayas, Nepal.

Intersectionality, Indigeneity, and Disability Climate Justice in Nepal

By Pratima Gurung, Penelope J.S. Stein, and Michael Ashley Stein

The climate crisis disproportionately impacts marginalized populations experiencing multilayered   and intersecting oppression, such as Indigenous Peoples with disabilities. To achieve climate justice, it is imperative to understand how multiple layers of oppression — arising from forces that include ableism, colonialism, patriarchy, and capitalism — interact and cause distinctive forms of multiple and intersectional discrimination. Only by understanding these forces can we develop effective, inclusive climate solutions.

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Photo of Alicia Ely Yamin doing fieldwork courtesy of Marion Brown.

Q&A with PFC Director of Global Health and Rights Project, Alicia Ely Yamin

Alicia Ely Yamin J.D. (1991), M.P.H. (1996), Ph.D. is a Lecturer on Law and the Director of the Global Health and Rights Project at the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics (PFC) at Harvard Law School; Adjunct Senior Lecturer on Health Policy and Management at the Harvard TH Chan School of Public Health; and Senior Adviser on Human Rights and Health Policy at the global health justice organization, Partners In Health.

Frequently labelled a scholar-activist, she combines academic research and scholarship that bridges law, development, and public health with grassroots work and policy advocacy. She has lived in seven countries on four continents, and worked with and for local advocacy organizations, including co-founding a program on health and human rights in the Asociación Pro Derechos Humanos (Lima, Peru; 1999).

In the interview below, she shares more about her career and life.

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