Medical Hospital: Neurologist and Neurosurgeon Talk, Use Computer, Analyse Patient MRI Scan, Diagnose Brain. Brain Surgery Health Clinic Lab: Two Professional Physicians Look at CT Scan. Close-up.

Creating Brain-Forward Policies Amid a ‘Mass Deterioration Event’

By Emily R.D. Murphy

COVID-19 will be with us — in our society and in our brains — for the foreseeable future. Especially as death and severe illness rates have dropped since the introduction of vaccines and therapeutics, widespread and potentially lasting brain effects of COVID have become a significant source of discussion, fear, and even pernicious rumors about the privileged deliberately seeking competitive economic advantages by avoiding COVID (by continuing to work from home and use other peoples’ labor to avoid exposures) and its consequent brain damage.

This symposium contribution focuses specifically on COVID’s lasting effects in our brains, about which much is still unknown. It is critical to focus on this — notwithstanding the uncertainty about what happens, to how many, and for how long — for two reasons. First, brain problems (and mental health) are largely invisible and thus overlooked and deprioritized. And second, our current disability laws and policies that might be thought to deal with the problem are not up to the looming task. Instead, we should affirmatively consider what brain-forward policies and governance could look like, building on lessons from past pandemics and towards a future of more universal support and structural accommodation of diminishment as well as disability.

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Doctors and patients sit and talk. At the table near the window in the hospital.

Does the Right to Health Enhance Patient Rights?

By Luciano Bottini Filho

Despite the value of a constitutionally enshrined right to health, such a guarantee, on its own, does not ensure patient rights or a nuanced understanding of patient-centered care.

This article will consider the case study of Brazil as an example. Despite Brazil’s recognition of the right to health, this constitutional protection does not set sufficient standards to guide judicial decision-making around patient care.

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Brooklyn, New York, United States - JUNE 13 2021: Protest in Brooklyn, NY for trans youth rights.

Misleading, Coercive Language in Bills Barring Trans Youth Access to Gender Affirming Care

By Arisa R. Marshall

On Friday, a federal judge temporarily enjoined part of a new Alabama law that would make it a felony for physicians to provide gender-affirming care to trans youth. The law had been in effect for less than a week.

This is only the most recent development relating to a raft of anti-trans legislation sweeping the country. More than twenty bills that would impose life-changing healthcare restrictions on transgender children have been introduced in statehouses nationwide over the past two years, threatening the wellbeing of transgender youth and communities. Most of these bills aim to entirely ban gender-affirming medical care for minors, including surgeries, prescription puberty blockers, and hormone replacement therapies.

These laws are detrimental to the mental, physical, and social health of children. They are dismissive of the experiences of transgender children and teenagers, misleading, and manipulative.

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Hand holding glass ball with inverted image of surroundings reflected in ball.

Flipping the Script: Adoption and Reproductive Justice

By Kimberly McKee

Adoption is a reproductive justice issue. Pretending otherwise ignores how adoption is used as a red herring in anti-abortion arguments. A recent invocation of this faulty logic occurred in Justice Amy Coney Barrett’s questions during the November 2021 oral arguments in Dobbs v. Jackson Women’s Health Organization. Coney Barrett’s statements implied that the option to relinquish infants vis-à-vis adoption rendered abortion availability unnecessary. This line of thinking is one with which I am familiar, as both a Korean international, transracial adoptee, and a critical adoption studies scholar. 

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Austin, TX, USA - Oct. 2, 2021: Two women participants at the Women's March rally at the Capitol protest SB 8, Texas' abortion law that effectively bans abortions after six weeks of pregnancy.

Organizing and Activism of Adopted and Displaced People

By Lina Vanegas

I am a transracial and transnational displaced person. I was separated from my country, language, and culture and taken to Michigan, which has no connection to me or my ancestors. I was taken there to create a family for strangers who had the privilege and resources to buy me. I had family in Colombia and I was far from being a true orphan. I was bought in Bogota, Colombia and sold to a white couple living in the Midwest in 1976. 

I use the word “displaced” intentionally, because the word “adopted” does not define my lived experience in an accurate way. The word “adopted” is language that was created by the child welfare-industrial complex, also known as the adoption industry. I do not subscribe to any of the constraints or barriers that they attempt to put onto my life with their language choices. Using the word “displaced” defines the intentional separation from my family by the child welfare-industrial complex. 

My lived experience has informed who I am and has inspired and motivated the work that I do online and in the world. It is very rare that adopted and displaced people’s lived experiences are seen, heard, validated, centered, and believed, so my mission is to do that online, on my podcast, Rescripting The Narrative, and in the work that I do as a social worker and with the organization Adoptees for Choice.

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Baby feet in hands

Striving Towards Ethical Adoption Practice

By Susan Dusza Guerra Leksander

In the United States, the practices of adoption are rarely oriented towards the goals of anti-racism, child-centeredness, and reproductive justice.

In this article, I present a model that strives to fulfill these goals. At Pact, an Adoption Alliance, the non-profit organization where I work as agency and clinical director, our mission is to serve adopted youth of color, and our approach to domestic infant adoption emerges from 30 years of serving Black, Latinx, Asian, and multiracial infants and their families. Based on our work with adopted children and adults of color, first/birth1 and adoptive parents, and adoption professionals, I will share our tenets of ethical adoption practice.

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Monarch Butterfly, pupae and cocoons are suspended. Concept transformation of Butterfly.

Understanding Transracial Adoption: Life-long Transformations, Not Frictionless Transactions 

By April Dinwoodie

I took a long, slow, deep breath when I heard Amy Coney Barrett, the adoptive mother of Black children, describe adoption as a “frictionless alternative to abortion.” As a Black/bi-racial transracially adopted person in mid-life, adoption has been and continues to be many things, but “frictionless” isn’t one of them.  

On the contrary, being adopted into a white family and raised in a majority white community has been filled with the tension between the realities of what I was experiencing and feeling, and what others thought I should be. For me, Amy Coney Barrett ridiculously over-simplified the most intricate experience of identity one can have, being born into one family and raised by another. This is especially complex when the separation includes differences of race, ethnicity, and culture. 

What I have learned over time is that Amy Coney Barrett is not alone in her desire to categorize adoption as uncomplicated and a good solution for everyone connected to the experience. What I have also learned is that this kind of thinking more broadly is unrealistic and often results in gaps in services and support for all parents (expectant, birth, and adoptive) and leaves adopted persons without the tools they need to navigate this lifelong, transformational journey.  

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United States Capitol Building - Washington, DC.

Psychedelic Policy on the Federal Level: Key Takeaways from a Petrie-Flom Center Panel

By James R. Jolin

To navigate the myriad interests and stakes involved in creating federal psychedelic policy, the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School convened a virtual panel discussion with three leading psychedelic policy advocates.

The conversation was situated against the backdrop of the “psychedelics renaissance” in the United States, which has been fueled by a wave of local and state legislation reducing or eliminating the criminal penalties associated with these substances.

Though many localities have made significant strides in addressing the legal questions surrounding psychedelic substances such as psilocybin and dimethyltryptamine (DMT), federal policymakers have not pursued similar initiatives.

Suggestions and considerations for federal psychedelic policy thus formed the substance of the discussion among the panelists:

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Two women shaking hands.

An Empathetic Ear: Strategies for Employer Health and Wellness Negotiations

By Stacey Lee, Jacobo Guzman, and Gladys Johnson

Amid federal and state vaccine mandates, labor shortages, and increased requests for remote work flexibility, employers find themselves in an evolving landscape with less latitude over their organization’s workplace. As a result, employers and employees find themselves in conversations about crafting a “new normal” in which worker well-being is featured more prominently than before.

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